Manon. (age9) When Manon was 3, she had an open heart operation for a cardiomyopathy. Manon suffers from a poly malformation syndrome, cardiomyopathy, and growth retardation. Genetic research is ongoing in the United States. So far this is the only case in the world. Manon also suffers from eczema. Her...
Diego (age7) is a beautiful boy, the same age as Violet and with the same cheeky little grin. Diego has a rare genetic disease, (glutaric aciduria), although it can be managed with medication and diet, there is no cure. Diego goes to Spain twice a year for 15 days to...
Meet Tahys. (age3) Tahys has biliary atresia. He received a liver transplant in January 2020. Tahys feeds mainly on bottles with specialised milk day and night at the cost of €400 per month (unfunded). His parents have 2 small incomes. When Tahys is in hospital, his parents only eat one...
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